How can we give palliative care to a dying child?

Share this article Share Gail Johnson, of the Royal College of Midwives, says it can be an invaluable tool because it acts directly on the uterus, making it contract. By slowly increasing the amount given, the frequency of contractions can be accelerated. Jack is into cars and computers and whizzing down slides over and over again. Olivia Scates, of JMW solicitors, discovered the firm was handling no fewer than seven cases where there was evidence of oxytocin being linked to brain damage in babies. The problem is that when oxytocin causes contractions to occur more frequently, they also become weaker and less effective in pushing the baby out, says Professor Steer. A wheelchair user, Jack still wears a nappy at night, and probably always will The drug can hyperstimulate the uterus, which means the spasms come so close together that the baby is starved of oxygen.

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Australia While we prefer not to think about it, death affects us all at some point. But that conversation is forced much earlier than anticipated for families whose child is diagnosed with a life-limiting illness. Also referred to as life-shortening, these illnesses put someone at increased risk of dying. Often, palliative care is needed. According to Mattie Stepanek , a child who died from a life-limiting neuromuscular illness, paediatric palliative care “no longer means helping children die well, it means helping children and their families to live well and then, when the time is certain, to help them die gently”.

Mattie Stepanek had dysautonomic mitochondrial myopathy and died aged Mattie Stepanek Palliative care focuses on a child’s quality of life and support for the whole family, including siblings and grandparents. Such care not only addresses the child’s illness but also their overall well-being — physical, emotional, cultural and spiritual. While there are similarities in the general principles of palliative care provided to children and adults, there are also key differences.

These include the types of conditions more common in children, and the need to pay special attention to the whole family, particularly the sick child’s siblings. Why a child may need palliative care A life-limiting condition means a child could die before the age of In the UK, about 32 children aged up to 19 per 10, are living with a life-limiting condition.

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Usually the child’s original paediatrician will stay involved and the palliative care service will act as an extra layer of support.

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